My Song Loops

My Song Loops

My Song Loops

My music interest is generally varied in terms of the types of music I seek. I have been exposed to diverse genres of music and my life has been enriched by amazing musicians from around the world. My parents have put a lot of thought and effort into this and it is something we really enjoy doing together. Music provides a lot of happiness and comfort in our home.

 

However I go through periods of intense desire to listen to the same set of songs over and over again. While this may not be entirely uncommon, I get to a state where it is almost impossible to function. It occurs primarily when I am sick and my body goes so out of whack that I struggle to make sense of it. I need a few things to hold onto and music becomes that. The familiarity with the songs provides peace and comfort.

 

So when does the sameness turn sour? When do you force a change? It really depends on the day for me. On days that need a significant amount of cognitive and/or physical effort, I prefer to have the same set of songs playing on repeat. It helps me focus on the task at hand. And on other days where the demand is less, I am fine without it.

 

The common concern that parents have is if their loved one would be stuck with the same songs forever. My personal experience has been that they serve a specific purpose for a period of time but I am able to get out of those when I don’t need them. This requires a lot of understanding, trust and collaboration with parents and other caregivers.

Swarit Gopalan

About the Author

I am an 11-yr old autistic, nonspeaker that uses letterboard to spell/keyboard to type to communicate.I live with my family in Florida and go to Invictus Academy for school. 
 
I find a lot of solace in expressing myself through poetry. Music and nature also help me stay in the present, there is nothing better for me than to have my movement create a symphony with nature and to truly enjoy the sights and sounds. Living in harmony with nature is my life’s mission.
 
Right from the time of diagnosis, we are only told about all things we cannot or will not be able to do. Along with the check that is written to the doctor for the diagnosis, it often feels like our agency is written off too, especially without a reliable communication mechanism.  
 
Time to change the paradigm with more non speaker voices. It has always been a dream to share my thoughts and perspectives with the world so that I can be one of the catalysts to creating a better understanding of non speakers in general. 
 
My hope is that my words will help change the world from sympathy and pity for those like me to one of deeper understanding of our lives and allyship to ensure our rights.

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